Elements of a new Ethical Framework for Big Data Research

Citation:

Effy Vayena, Urs Gasser, Alexandra Wood, David R. O'Brien, and Micah Altman. 2015. “Elements of a new Ethical Framework for Big Data Research.” In Future of Privacy Forum Workshop: Beyond IRBs: Designing Ethical Review Processes for Big Data. Washington D.C. Date Presented: Dec 2015.
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Abstract:

Emerging large-scale data sources hold tremendous potential for new scientific research into human biology, behaviors, and relationships. At the same time, big data research presents privacy and ethical challenges that the current regulatory framework is ill-suited to address. In light of the immense value of large-scale research data, the central question moving forward is not whether such data should be made available for research, but rather how the benefits can be captured in a way that respects fundamental principles of ethics and privacy. 

Last updated on 09/02/2016